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Venofer Iron Infusions – Round 3 (The Last!)

23 May

Today (Thursday 5/23) was my very last Venofer infusion. I was so excited that it was the last one, but my stomach was a mess with nerves and dread since I didn’t have that great of an experience on Tuesday.

I am so thankful my Mom went with me (no matter what you may think, you are NEVER too old for your mom!) – she even made me a care package! Magazines, animal cookies, and coloring book and crayons (Crayola, for the win!) :)

I actually had a bit of a meltdown when they tried to get the IV in. They tried my left arm around the same spot they used on Monday with success, but found nothing. Then they tried my right hand – that sent me over the edge and I had a meltdown (I’d say it was a Three Mile Island, not quite a Chernobyl…). I think I was just so tired of being stuck and prodded with needles…they don’t take me seriously when I tell them I’m a weenie! And this was my first major medical procedure in my 31 years…I’ve never been in hospital or anything before, so the experience of IV medication was completely new to me.

This super sweet nurse came to my rescue though, and ended up bringing out an ultrasound machine to find a good vein…that’s the trick to it, I guess! She also used a little larger (peripheral IV) needle instead of the butterfly needles they used before. Once she did this, I was ready to go! Per my request, they diluted with saline the whole time, and I had no troubles at all. SO happy it’s over with!

The last Venofer Infusion...Lets hope for a long while!!

The last Venofer Infusion...Let's hope for a long while!!

Nearly there!

Nearly there!

Thank you all for your thoughts and prayers during this process! I will definitely continue to share updates on my progress with my iron levels and diagnosis of other issues.

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Venofer Iron IV/Infusions – Round 2

22 May

Ugh. That’s all I can say that sums up this round of infusions. Round 2 took place on Tuesday (5/21).

I didn’t have any adverse reactions to the Venofer, but I had a very difficult time with the IV, as you’ll notice in the pictures to follow (nothing nasty…just bruising!) They attempted the right arm but couldn’t find an adequate vein to use. So they went back to my left arm, and selected a spot in my forearm…must have been a smallish vein as it became highly irritated during the infusion! I noticed a burning/stinging sensation, then some redness around the area. It looked as though there may have been solution being absorbed into the surrounding tissues or the iron just really irritated the veins. They diluted the iron a bit, running a saline solution along with the iron, which helped with the stinging. (You can see in the picture below, the redness spreading around the IV site…)

2nd Infusion - IV was not comfortable at all!

2nd Infusion - IV was not comfortable at all!

By the time I was done, though, it felt like someone hauled off and slugged me in the arm! As soon as I got home, I took a couple Tylenol and iced my arm in hopes it would alleviate some of the discomfort.

Yowza!

Yowza!

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Anemia – What I’m Learning, Part 2

22 May

This post will explain a handful of the common symptoms a lot of folks experience who are also anemic. Someone once said to me, “How could you not notice something wasn’t right?!” Well, read through the list – they all seem like very common ailments, don’t you think? I mean, if I went to the doctor every time I felt a little light-headed or tired, I’d be there all the darn time!  All the things in bold are things I’ve experienced for so long I couldn’t even tell you when it started…things that I could easily attribute to other causes (out of shape, overweight, high blood pressure, etc)…and one is a bit TMI, so sorry in advance.

Weakness and fatigue are the most common symptoms of anemia. Even iron deficiency without anemia can reduce working capacity in some people. (I attributed this to being really out of shape – it often feels like I’m carrying a really heavy back-pack or sacks of bricks. My legs and arms feel so heavy.)

Shortness of breath on exertion (Again, thought I was just out of shape…)

Rapid heartbeat (Didn’t happen all the time, but I’d get the weird fluttering…)

Lightheadedness or dizziness (several times I’d get so dizzy the room would spin, especially during “that time”)

•Headache

Ringing in the ears (tinnitus) (I tried so hard to explain this one to people, but it just wasn’t making sense! It was like a very muffled constant throbbing noise in my ears…thought it was a sensitivity to the power substation across the street, or maybe high blood pressure)

Irritability and other mood disturbances (Do I really need to elaborate on this one?!)

Pale skin (however, healthy-looking skin color does not rule out anemia if a patient has risk factors and other symptoms of anemia) (…who goes to Florida and doesn’t at least get a little bit of sun? Uh, me.)

Mental confusion (Constantly forgetting things; failing to remember to bring something to work, etc. No recollection of Chris telling me some things, when he swore up and down he had…)

So those seem like pretty ‘normal’ symptoms, right? Things that are common or well-known, and not embarrassing in the least…well let me change that for you.

Keep reading… 

Pica. One odd symptom, which in some cases is also a cause of iron deficiency, is pica. This is the habit of eating unusual substances, such as ice (called pagophagia), clay, cardboard, foods that crunch (such as raw potatoes, carrots, or celery), or raw starch. The pica often stops, particularly in children, when iron supplements are given. Pica is difficult to detect because patients are often ashamed to admit to such cravings. (This. It is so weird, and sounds so crazy… I have no idea how else to describe it, but I would want to chew on the weirdest things!! Popsicle sticks, drinking straws, chewing gum, the really dense ice cubes like the ice machine downstairs, apples, carrots, broccoli, etc. Sometimes smells or textures trigger it – the smell/texture of pencils, lumber, etc… See, weird. Not something you really want to admit to a lot of people out of fear you’ll be committed.)

Pica. Many people attribute this to people with psychological disorders or mental illness, and is present in a lot of children. It ranges from just chewing on things like my case, or actually consuming the non-edible/non-nutritive substances like rocks, clay, chalk, soap, and many MANY other things.  There is no known reason why this is a symptom of anemia – one theory is that it may have something to do with whatever minerals/vitamins the body is deficient (not sure how soap works into that). I am very lucky because my case is merely chewing on ‘normal’ things – drinking straws, wooden popsicle sticks, pen caps, etc. I never understood this – I thought it was something to do with my teeth or just an OCD trait, but it all makes sense now.

And get this – about the whole month prior, I’d eaten apples, carrots, and broccoli like crazy; my straws looked like a small puppy got a hold of them! Since I’ve started on the iron supplements and the Venofer infusions, I haven’t noticed nearly the impulse to chew on things! It just dawned on me today at lunch, as I was passing over the broccoli on the salad bar. It’s truly amazing there would be a connection to this!

 

So, as you can see – very common symptoms for a very common ailment, but one that can wreak havoc on your life if you don’t get it checked out! If you are extremely tired and lethargic feeling, talk to your doctor about it – don’t be afraid to ask about getting your iron levels checked or other blood work to narrow down the cause!

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Anemia – What I’m Learning, Part 1

22 May

I posted yesterday morning about my recent experience with Venofer iron infusions. Today I’ll tell you a bit about how I arrived at that juncture.

I began seeing an internist in February for some lingering ‘female issues’ I’ve been having for a few months – very heavy cycles and bleeding between cycles. I was also experiencing a lot of pain in my lower abdomen, lower back, and pelvic region. In addition to ordering an ultrasound to check things out, she also ordered some blood tests to check all my levels. My doctor also asked that I take some progesterone to try and get the bleeding toned down a bit between cycles. I was to take this 10 days off, 10 days on until I heard otherwise.

The ultrasound came back showing I have a cyst on each ovary (5cm on the left, 3.5cm on the right which also appeared to have some blood inside it); the progesterone seemed to slow things down a bit, and I definitely felt a bit more energy and overall mood improvement. But because of the blood in the cyst, my doctor ordered some additional blood work to see what was up. I had previously been diagnosed with von Willebrands Factor –  though it was a seemingly mild case. She wanted to test my levels again to see if they were still indicating a deficiency, or if that was a fluke. She ordered a complete blood count (CBC), Iron Panel, and PT/INR (clotting) panel. She also referred me to a GYN who ordered a thyroid test.

Per the lab results:

Iron: 12 (41-182)

TIBC: 387 (300-450)

Iron % Saturation: 3 (20-55)

My CBC also came back with low counts for the following:

Hemoglobin: 9.2 (12.0-15.0) (This is the iron-containing oxygen-transport metalloprotein (protein containing metal ion cofactor) in the red blood cells)

Hematocrit: 32.5 (33.2-41.1) (This is the volume percentage (%) of red blood cells in blood.)

MCV: 71.3 (79.3-94.8) (”mean cell volume” (MCV), is a measure of the average red blood cell volume)

MCH: 20.2 (26.8-33.2) (“mean cell hemoglobin” (MCH), is the average mass of hemoglobin per red blood cell in a sample of blood)

MCHC: 28.3 (33.5-37.0) (“mean cell hemoglobin” (MCH), is the average mass of hemoglobin per red blood cell in a sample of blood)

TSH & T4 (thyroid tests)came back in the normal ranges.

The nurse read the results over the phone, but went through them so fast I requested to have copies available. She also mentioned the iron infusion that was ordered for me, but provided very little information on the process. I was very frustrated that I wasn’t given a lot of information about what to expect, how to prep, any restrictions, etc. I didn’t even know how long it will take, or how much time I’ll be away from work! (Thank goodness for a very flexible supervisor!)

Left to my own devices, I researched on my own, which always has drawbacks. All I seemed to find was negative experiences with iron infusions – the bad side effects or allergic reactions that people had. I could find very little in the way of positive news! This is mostly the reason I’d like to share my story with you – in the hopes it may help someone else!

In my next post, I’ll outline many of the common symptoms of anemia, and share with you how I felt before I found there was a reason for it, including the weirdest, most embarrassing symptom I’ve ever known…

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Venofer Iron IV/Infusion – Round 1

21 May

I had my first iron infusion yesterday (Monday 5/20/13). Let me preface this by saying I am a HUGE weenie and I was dreading this big time! My husband came along with me to keep me at ease, and that helped a lot. It also helped that the ladies in the Outpatient Clinic were super nice!!

My appt was at 12:30 and I was told to call an hour before so they could order my iron IV from the pharmacy. I arrived about 15 minutes early, and after I checked in, they directed me to the room where I’d make myself comfortable for the next few hours. Yes, few hours. It takes about 2.5 to 3 hours for each infusion! (Don’t panic – there was a sweet lady next to me who had been there for 6 hours that day…she had some kind of virus in her heart and now has to have an IV treatment five times…I don’t know what was in her IV, but bless her heart!)

As I walked into the room, they told me to pick a seat. The room was rounded – kind of like a horse shoe shape – and all along the perimeter were squishy recliners, side tables, the IV stand, and a little television. I selected one next to the lady I mentioned above. Within a few minutes one of the nurses began prepping my arm for the IV. Again, huge weenie, so I was not looking forward to this part!! She was a true professional, though, and within a few seconds had my port ready to go. I was doing fine, calm and everything, until I saw the bag of brown fluid that was about to be pumped into me! So I turned to my husband to hold my attention for a while  :)

Venofer Iron Infusion - Round 1

Venofer Iron Infusion - Round 1

 As soon as the drip started, I didn’t really feel anything. Then I felt the cold begin circulating throughout my body. It was an interesting feeling, to say the least. The nurse brought me a warmed blanket and asked if I wanted anything to drink. I brought my own water and some crackers on the advice of a friend, so I was set. About 20 minutes into the drip, the IV decided to be all shouty and loud. Apparently the drip wasn’t flowing as well as it should. The nurse propped my arm on a pillow and silenced the machine. They nurses also made their rounds, asking if any of the patients needed refreshments or bathroom breaks.

I never had any pain or total discomfort – just the coldness of the IV and a slight stinging where the IV was inserted. I didn’t notice any other stinging or burning anywhere else, so I figured that was good.  I managed to start a new book and read a couple chapters into it before I realized the drip was almost empty! The last 30 minutes felt like an eternity – waiting for the bag to totally drain and then begin the observation period. Because I’d never had the iron IV before, they wanted to be sure I didn’t have any reactions. Some people are allergic to it – breaking out in hives, etc. This brand of iron – Venofer – seems to have the lowest occurrences of allergic reactions or side effects. I’ve read that people who cannot tolerate taking pills or multivitamins in general seem to have more side effects (headaches, stomach aches, diarrhea, nausea, etc) So far, I’ve had brownish colored urine, which is normal I hear and only happens the first couple times you use the restroom after the treatment.

I go back today (5/21) for my 2nd infusion, and then again on Thursday (5/23) for the final infusion. The nurses said it may take anywhere from 3-4 weeks before I notice any difference, but this is a much quicker process for raising the levels than relying on the oral supplements alone.

Today I am going to ask them to try the IV in my right arm since the left was a little sore yesterday…and hope they can find a good vein without too much prodding…my veins are so tricky and like to hide sometimes, even after drinking buckets of water!

I know there are a lot of stories like this on the interwebz, but I think it’s important to hear both the good and the bad so you kind of know what to expect…especially in cases like mine where the doctor hasn’t provided much in the way of information on the treatment, and just tells you that you need to do it!

I’ll be back later this week with the rest of my experience…which I hope will go as smoothly as the first!

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TGBC 2013 – Bonus post! Shock Top Honeycrisp Apple Wheat

01 Apr

In the usual fashion, Easter dinner was held at my Aunt and Uncle’s house – these folks are beer champions of the world…want a recommendation for a new beer? Ask UM and AK – they will most certainly have something to intrigue your tastebuds!

The mini-fridge was stocked with sodas of all kinds, and of course there were some interesting selections of beer to be found. Since it had been a trying week, I thought eh, why not…so I rummaged around until I found this gem:

Shock Top Honeycrisp Apple Wheat

Shock Top Honeycrisp Apple Wheat

Shock Top Honeycrisp Apple Wheat

It was tasty, it was refreshing. Not as strong an apple flavor as one might hope for, but it was still good! Still adding to my beer-tasting experience – one of these days I’ll really go out on a limb! :)

Disclaimer: I’m reviewing these of my own will, and all beverages were purchased with my own money. I was not contacted by any of the companies mentioned, nor am I being compensated in any way for these reviews.

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TGBC 2013 – Samuel Adams Cherry Wheat

01 Apr

So sorry the lack of posts lately – the nasty flu bugs bit us hard this winter and both my husband and I were down for the count for a few weeks. Add into that, a death in the family and it’s just been a bit chaotic.

Have no fear, though! I am still sticking with The Great Beer Challenge and have another one to post! (Ok, ok, pick yourselves up – I know you’re in disbelief that I’ve stuck with it this long!)

Today, I’ll be sharing the Samuel Adams Cherry Wheat. Yes, it’s another fruity brew, and yes I liked it.

Samuel Adams Cherry Wheat

Samuel Adams Cherry Wheat

The site says: “Crisp and fruity with a hint of honey, this cherry brewed ale has a surprising depth while being light on the palate.”

It was very light, and very refreshing. The flavor of the cherries was definitely there, but it wasn’t overwhelmingly sweet or fruity…yet it wasn’t overwhelmingly beer-tasting either. If that makes sense. It wasn’t as fruity as the Razz-Wheat from Oaken Barrel, but that’s not a bad thing. If you’re looking for something with a light flavor without compromising the beer taste, this would be a good pick.

Disclaimer: I’m reviewing these of my own will, and all beverages were purchased with my own money. I was not contacted by any of the companies mentioned, nor am I being compensated in any way for these reviews.

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TGBC 2013 – Oaken Barrel Razz-Wheat

20 Feb

The next selection for The Great Beer Challenge 2013 was Oaken Barrel’s Razz-Wheat; from the brewer’s website:

“This Americanized version of a Belgian fruit beer has maintained a strong balanced following throughout its celebrated history which includes a silver medal in the Great American Beer Festival. Razz-Wheat receives its award-winning flavor and eye-catching color from fresh Oregon raspberries. This beer provides a refreshing finish aimed at your sweet side.”

Oaken Barrel Brewery Razz-Wheat

Oaken Barrel Brewery Razz-Wheat

This was my 2nd choice for the challenge because I was really hoping for a refreshing raspberry flavor, and honestly I was just getting over the horrible plague-like cold that’s been going around. It sounded tasty and like a good way to self-medicate :)

Upon opening the bottle, I sniffed it…had the usual beer smell with a hint of raspberries. I poured some into a glass to check out the color – I don’t know that I’d say it was as they described on the website, but it had a slight raspberry tint to it. The first sip was great – raspberry flavor was pretty good. I managed to get through 3/4 of the bottle before I gave up though – the flavor just got to be too much for me! I think it would be really good ice cold, though – mine was just slightly more chilled than room temp.

All in all, I’d get this if I were at a restaurant, or in one of these mix-and-match packs again, but I don’t think I’d buy a whole bunch of it at a time.

Disclaimer: I’m reviewing these of my own will, and all beverages were purchased with my own money. I was not contacted by any of the companies mentioned, nor am I being compensated in any way for these reviews.

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The Great Beer Challenge 2013 – Woodchuck Hard Cider Granny Smith

30 Jan

Admittedly I cheated a bit with this one; I’ve had hard ciders before so I knew what I was getting myself into with this one. :)

I know many serious beer drinkers dismiss hard cider as a sissy drink and not really in the beer category…and that could be why I’ve been able to drink it as easily as I have! In my search for a good cider, I’ve had a few varieties – Crispin, Angry Orchard, Hornsby’s, and now Woodchuck. While each are similar in their fresh apple flavor, they are all different, which I thought was interesting.

My first beverage for the GBC13, Woodchuck Hard Cider Granny Smith.

My first beverage for the GBC13, Woodchuck Hard Cider Granny Smith.

First, let’s learn a check out what their website has to say about this variety:

Made from only Granny Smith apples, this one’s a lot more tart and quite a bit tangier than your average Woodchuck. If you’re a green apple sort of person, this could be your Woodchuck.

One nice thing to note – most, if not all hard ciders are gluten-free; this brand is no exception.

I drank this one straight from the bottle; the others I will make more of a presentation out of :) The taste was more tart than I really care for, and had more of a malt beverage taste, which is OK but didn’t seem quite right with this particular flavor of apple. The Granny Smith does come out quite well in this – gives you a similar pucker to when you eat an apple of that variety. It isn’t my favorite of the hard ciders that I’ve had, but I wanted to be fair in my assessment.

On a scale of 1 to 5, I’ve give it a 3.

(As an aside, my favorite brand of hard cider to date is Crispin “Classic Blue Line” Natural Cider – it is by far the crispest, cleanest tasting cider I’ve tried; it is great with high-end pizza too! It is a little expensive, but worth it! Hornsby’s is my 2nd choice – it isn’t as expensive as the Crispin, but still has a good flavor. Angry Orchard is a Samuel Adams offering, and is tasty, but nothing spectacular. Then I’d list the Woodchuck. Again, my personal opinion only!)

Disclaimer: I’m reviewing these of my own will, and all beverages were purchased with my own money. I was not contacted by any of the companies mentioned, nor am I being compensated in any way for these reviews.

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The Great Beer Challenge 2013

28 Jan

…or my personal quest to find a beer that doesn’t make me grimace when I drink it.

It is known to my family and friends that I am not a beer drinker. I don’t particularly like the smell of most beers, and while they look really refreshing on a hot day – frothy and ice cold – one sip of it makes my toes curl and makes me gag.

At Christmastime I tried an unusual concoction from Sam Adams – those in the know call it Chocolate Bock…whatever that means. It was crazy…it had a faint taste of beer…and it had this peculiar velvety chocolate finish. (Listen to me, like I know what I’m saying…velvety chocolate finish…ha!) According to my Uncle, it’s a “sipper…something you’d take an hour or two to just slowly sip and enjoy.” I was intrigued…and decided to embark upon this journey…

Being a total beer novice I didn’t want to buy an entire 6-pack of something and end up hating it (though I’m sure I know enough people who would gladly take the remaining beer off my hands), I was pleased to remember that our local Kroger/Scott’s grocery store has a mix-and-match deal – you select your own varieties and build your own 6-pack. With great excitement and trepidation, I began perusing the selections. Again, no knowledge of IPA, Belgium, fruit, sorghum, etc…it took me a good 30 minutes to fill my little cardboard 6-pack case. :) I did not use a very scientific approach to this – some were selected based on previous experience, some on recommendation of friends, and if I’m honest, the label or where it was brewed/bottled.  And so begins my beer-tasting adventure.

I will be sampling some different beers and adding my $0.02 to the world wide interwebz – mostly for my amusement, but maybe you, dear readers, may find some entertainment as well.

So, without further ado, here is the starting line-up for the first round:

Stella Artois and Woodchuck Hard Cider Granny Smith

Stella and Woodchuck Granny Smith

Stella and Woodchuck Granny Smith

Samuel Adams Cherry Wheat and Redbridge Gluten-Free Sorghum Beer

Sam Adams Cherry Wheat and Redbridge

Sam Adams Cherry Wheat and Redbridge

Breckenridge Christmas Ale and Oaken Barrel Brewery Razz-Wheat

Breckenridge Christmas Ale and Oaken Barrel Razz-Wheat

Breckenridge Christmas Ale and Oaken Barrel Razz-Wheat

So, there’s the cast for this silly little challenge I’ve set for myself. Stay tuned for my next installment in which I attempt to consume one of these intriguing brews.

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